An Unexpected Situation Made 1000 Times Worse

NCCS families struggle with the added burden of the pandemic

We know the pandemic has created even more stress four our families.  In a recent survey by the NCCS, we found that:

  • 85% of our families report they have lost their jobs or have had a reduction in hours (75% of our families report earning less than $50,000 a year)
  • 25% of families have experienced a delay in treatment or follow-up care which was decided by the treating facility
  • 20% of families have asked for treatment or follow-up care to be delayed due to COVID-19 related concerns
  • Nearly 56% report being concerned about how they will afford the expenses associated with their child’s treatment
  • 91% report feelings of anxiety due to COVID-19 and the majority reported experiencing excessive worry
  •  83% report depressive feelings due to COVID-19 with the majority experiencing sleep disturbance and lack of energy

As one parent commented in the survey, “To put it simply, it has made an already unexpected and traumatizing situation 1,000 times worse.”

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