Caregivers Staying Healthy

When a child is diagnosed with cancer, self-care is often the last thing on your mind. Medical professionals may say, “You have to take care of yourself to take care of your child,” but putting that into practice can feel nearly impossible. The truth is, self-care doesn’t have to be elaborate; it can be found in small moments of calm in between the storm.

You may feel the weight of responsibility to care for everyone, especially your sick child, and in doing so, may lose sight of your own needs. This emotional, physical, and mental toll can be exhausting. While accepting help can feel difficult, trying to navigate this journey alone is even harder. There’s strength in leaning on family, friends, your community, and hospital staff for support.

No one is ever prepared to hear the words, “your child has cancer.” The flood of emotions that follows, such as fear, anxiety, and overwhelm, is completely normal. While there’s no way to eliminate all the stress that comes with caring for a seriously ill child, there are ways to cope. Prioritizing even small acts of self-care can make a meaningful difference during this incredibly challenging time.

DON’T BE AFRAID TO ASK FOR HELP

It might feel strange to ask for help from family and friends, but they want to support you. Often, they simply don’t know how. Allowing others to take on some of life’s everyday tasks can ease your burden and give them a meaningful way to contribute. Consider letting someone babysit your other children, prepare meals, or run errands. Even small gestures can make a big difference.

DON’T FORGET YOUR BASIC NEEDS

There are so many temptations to skip meals, showers, or neglect your basic self-care activities such as exercising and getting a good night’s sleep. These small acts add up, taking care of your body can give you the energy you need to continue taking care of yourself and your family.

TAKE BREAKS

Stepping away for a short time can help. Next time your child is sleeping or undergoing treatment, take a few minutes for yourself. Consider stepping outside and getting some fresh air. Studies show that walking helps your body release endorphins, or “feel good” chemicals which can help to improve your mood.

SELF-CARE TIPS

Get creative when it comes to self-care. Self-care can be as small as taking a couple of minutes to put on a face mask, write in a journal, or exercise. Whatever works for you, make sure you’re taking some time for yourself. Try to create a self-care routine. It can be easier to stick with something when you consistently make the time for it.

Meet Ezra

Ezra was diagnosed with hepatoblastoma liver cancer Ezra was diagnosed with hepatoblastoma liver cancer on May 22, 2024. His mother, Breann remembers, “From that day on, my whole life flipped upside down. There is nothing in this world that can prepare you to hear the words, ‘Your son has cancer.’ From that day on, I wouldn’t look at anything the same. After a year of being in this crazy journey, self-care has been one of the biggest and hardest struggles.”

Ezra was diagnosed with hepatoblastoma liver cancer Breann shares there were times she struggled with caring for herself, because of the guilt she felt from not knowing Ezra had cancer sooner. “From day one, all the doctors and nurses tell you make sure you take care of yourself, but how do you expect me to take a shower, or brush my hair, or my teeth? I just want to sit there and sulk and figure out how… how did I miss this?”

Breann goes on, “As the months went on and surgery after surgery, I started to decline; not showering, not changing my clothes. Being a hospital mom is hard. You never sleep, hardly eat, and shower when you can. It’s honestly the small things for me that help me get through every day.”

Breann and Ezra’s experience with the Child Life Specialist in their hospital goes beyond the care of just Ezra. Breann explains, “I love art, and that is what helps me best get through my tough times, the stuff they can find or get in a hospital is amazing, they helped me with my diamond art so that way I would forever stay busy every time we are admitted.”

Ezra was diagnosed with hepatoblastoma liver cancer Breann’s advice for any parent going through this is “keep your head up, our kids are so resilient, and strong.  Even after finding out my son is stage 4 and considered terminal I will not let this define him, we are still fighting and will continue to fight. Stay strong and take care of yourself! Even if you have to start small.”

Ezra was diagnosed with hepatoblastoma liver cancer Breann shares about all the people in her corner and her community, “My fiancé is my backbone making sure I get my daily coffee and that I get my nails done. It’s honestly sometimes the smallest things that are considered self-care.”

Self-care can be difficult to implement but is crucial to your well-being and the well-being of your child with cancer. Visit our website, and download the NCCS piece Emotional Concerns With Cancer to learn tips for coping with the various emotions that come with a childhood cancer diagnosis.