Coping with Limb Loss

For some children, an amputation becomes a necessary part of cancer treatment—especially in cases of bone cancer or complications from treatment. Adjusting to this change is deeply emotional and often takes time. Children and their families may experience a range of feelings, including limb loss grief, anger, fear, sadness, or insecurity. These are all normal responses to such a profound loss.

GRIEF OFTEN UNFOLDS IN STAGES, WHICH MAY HAPPEN IN ANY ORDER:

  • Denial – feeling numb or in disbelief
  • Anger – frustration and pain over the loss
  • Bargaining – reflecting on “what ifs” or wishing things were different
  • Depression – sadness, hopelessness, or withdrawal
  • Acceptance – coming to terms with the loss and beginning to move forward

TIPS FOR COPING WITH LIMB LOSS GRIEF, BODY IMAGE DISTRESS, FEAR AND OTHER EMOTIONS INCLUDE:

  • Talk openly about emotions, even negative ones, instead of bottling them up.
  • Connect with others who have had an amputation.
  • Use creative outlets like journaling, art, or music to process feelings.
  • Join support groups or online communities to connect with others.
  • Prioritize self-care: nutrition, sleep, and relaxation matter.
  • Ask your child’s doctor about what to expect—information can ease anxiety.
  • If sadness or fear becomes overwhelming, speak to a mental health professional.

Meet Courtney

Nine-year-old Courtney was diagnosed with osteosarcoma in his femur. When his family learned that amputation would be part of his treatment, it was incredibly difficult to accept. His mom, Tianna, shared: “Sometimes life can take an unexpected turn and all the plans and goals you have can be put on pause.”

Courtney’s surgery went well. While losing his femur was an overwhelming reality to face, knowing it saved his life helped him find peace with it, allowing for a smooth recovery. He’s now walking—and dancing—with his prosthetic leg. Tianna shares, “Prayer has gotten our family through this cancer diagnosis and amputation experience. We have great family and friends who have supported us every step of the way.” Her advice to other families who are faced with an amputation is “rely on prayer and the people around you.”

Emotional support plays a huge role in a child’s recovery after limb loss. Listen, encourage, and be present. The Amputee Coalition is a wonderful resource for education, advocacy, and peer support for people with amputations. The National Children’s Cancer Society offers information for survivors regarding the emotions that may come from their cancer experience, click here to learn more.