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Helpful Links

 

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Advocacy and Legislation

Alliance for Childhood Cancer
The ACC includes national patient-advocate groups as well as professional medical and scientific organizations. They collaborate to advance research and policies to prevent cancer.

American Society of Clinical Oncology
ASCO is a professional oncology society committed to conquering cancer through research, education, prevention and delivery of high-quality patient care.

C-Change
C-Change is a national organization of cancer leaders from across all areas of the cancer community. The website has news relevant to cancer patients and survivors and opportunities to impact legislative change.

The Children's Cause for Cancer Advocacy
The Children's Cause brings the voices of childhood cancer survivors and their families to national policies which affect them. Updates on relevant policies and issues are available on the website.

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Camps

Children's Oncology Camping Association, International
Connects children and families touched by childhood cancer to appropriate summer camps.

Kids Camp
This website lists oncology camps by region and state.

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Clinical Trials

CenterWatch
This comprehensive website offers information on government and pharmaceutical company sponsored clinical trials, as well as information on newly approved drugs.

Children's Oncology Group
This website offers information about clinical trials and the Children's Oncology Group, a network of hospitals that unite researchers at more than 200 leading children's hospitals, universities, and cancer centers.

NCI
Information on understanding and finding clinical trials. The site contains information on more than 12,000+ open clinical trials.

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Disabilities

ABLEDATA
This assistive-technology organization provides information about rehabilitation equipment.

Clearinghouse on Disability Information
The Clearinghouse provides information to people with disabilities by doing research and providing documents in response to inquiries regarding federal funding for disability-related programs.

National Center for Learning Disabilities
Conducts educational programs, provides services, and recommends instructional activities to aid those with learning disabilities.

National Disability Rights Network
Through training, technical assistance, legal support, and legislative advocacy, they work to create a society in which people with disabilities are afforded equal opportunity and full participation.

National Rehabilitation Information Center
It provides direct, personal and high-quality information to the disability and rehabilitation community. This website offers online publications, searchable databases and timely reference and referral data.

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Education

Children’s Defense Fund
Its "Leave No Child Behind" mission is to ensure every child a Healthy Start, a Head Start, a Fair Start, a Safe Start, and a Moral Start in life and successful passage to adulthood.

HEATH Resource Center
It provides information about educational support services, policies, procedures, adaptations and opportunities at American campuses, career-technical schools and other postsecondary training entities.

National Center for Learning Disabilities
Conducts educational programs, provides services, and recommends instructional activities to aid those with learning disabilities.

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Emotional Support

American Cancer Society
A community of online survivors and their families with both chats and a message board. The community consists of adult and childhood cancer survivors.

Cancer Care
This site has many online professionally moderated forums for people living with cancer and their partners.

CaringBridge
This website connects family and friends during a health crisis. It can ease the burden of keeping loved ones updated, while also providing a way for them to send their love and encouragement.

Grouploop
This website has professionally mentored online support groups as well as a discussion board.

Imerman Angels
This group provides one-on-one cancer support: connecting cancer fighters, survivors and caregivers. They can partner a person fighting cancer with someone who has beaten the same type of cancer.

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Employment

Americans with Disabilities Act (ADA)
Information on The Americans with Disabilities Act and current issues regarding disability rights.

Equal Employment Opportunities Commission
Information about EEO Laws, how to file a discrimination charge and statistical information.

Job Accommodation Network
Provides free information on how employers can accommodate people with disabilities.

O*NET
This website has an interactive application for exploring occupations with accommodation features to assist in counseling people with disabilities.

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Financial Support

Alex's Lemonade Stand
Their Travel Fund helps families with travel expenses such as gas, parking and lodging.

American Cancer Society
The site provides a resource search engine based on your zip code.

B+ Foundation
The Foundation provides grants to minimize the financial hardship that is directly attributable to the child's illness.

Childhood Leukemia Foundation
This site offers a range of free services, including kid-friendly hats with human hair, gift baskets, gift cards, financial aid and sponsorships to pediatric-oncology summer camps.

First Hand Foundation
Assists children with health problems by providing financial assistance for treatment, equipment, displacement and vehicle modifications.

Ronald McDonald House Charities
This site has guidelines and Ronald McDonald House locations across the country.

United Healthcare Children's Foundation
This foundation accepts grant applications from families who need financial help to cover the cost of child medical services such as speech, physical or occupational therapy, prescriptions, and medical equipment such as wheelchairs, orthotics and hearing aids.

Wigs for Kids
This nonprofit organization provides wigs and also accepts hair donations.

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Grief

Facing Bereavement
This website was formed to offer a unique reference point on facing and dealing with bereavement. It has up-to-date articles and newsletters written by professional journalists and experts.

M.I.S.S. Mothers in Sympathy and Support
This site has inspirational poetry, articles and information for professionals. It also offers families a way to communicate their story and share with others who are also suffering through grief.

The Compassionate Friends
This organization offers brochures, conferences, sibling chats, cyber friends and pen pals to people suffering the loss of a child.

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Health Insurance

Healthcare.gov
This site provides information on insurance options, quality care and information on new healthcare reform.

National Association of Insurance Commissioners
Provides information and contacts on state health insurance programs.

National Coalition for Cancer Survivorship
Provides an informational book for adult survivors on health insurance. The book is also available in Spanish.

Patient Advocate Foundation
They offer patients free assistance in mediating with insurance companies to assure access to care, maintenance of employment and preservation of their financial stability.

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Health and Prevention

American Heart Association
This is a great resource for getting healthy and provides information on nutrition, physical activity, weight management, stress management and quitting smoking.

American Institute for Cancer Research
This website is dedicated to diet and its relationship to cancer and cancer prevention.

American Lung Association
Tips on how and why to quit smoking.

Oncolink
This site contains diet information during and after treatment.

Sun Safety Alliance
This site educates the public on the importance of sun care safety, especially for children.

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Medical

American Cancer Society
The site offers a tool to assist in deciding treatment options and questions to ask your doctor. It also contains descriptions and guides for the main forms of cancer treatment.

Childhood Cancer Guides (CCG)
Publishes books that provide clear explanations of the various types of childhood cancer; descriptions of state-of-the-art treatments for childhood cancers; emotional support for every member of the family and access to helpful resources.

Children's Oncology Group
Lists the hospitals which are members of the Clinical Oncology Group in the United States.

ExploreBMT.org
From diagnosis through survivorship, patients and their loved ones can use this site to browse resources and services from respected patient organizations.

Leukemia and Lymphoma Society
The site offers disease and treatment information for leukemia and lymphoma patients and their families. On-site questions and answers.

National Brain Tumor Society
The site offers support and education for brain tumor patients and their families and allows users to e-mail questions to a nurse specializing in brain tumors.

National Cancer Institute
Provides information on clinical trials, cancer statistics, research and other cancer related news.

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Scholarships

Beyond the Cure Ambassador Scholarship Program 
The National Children’s Cancer Society awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation. Forty $3,500 scholarships will be awarded each academic year.

Financial Aid Information
Information about college scholarships, loans and other types of financial aid.

National Collegiate Cancer Foundation
$1,000 competitive awards are given based upon financial need, quality of essay and recommendations, displaying a "Will Win" attitude, and overall story of cancer survivorship.

Patient Advocate Foundation
They award $3,000 competitive scholarships to those diagnosed with and/or been actively treated for a life threatening disease within the past 5 years.

Pediatric Brain Tumor Foundation
They offer a one-year award of $500 to childhood brain tumor survivors.

The SAMFund
They provide financial assistance to young adults as they move forward with their lives after cancer. Their grants can be used towards medical bills, insurance premiums, tuition, loans, computers, etc.

The Ulman Fund for Young Adults
$2,500 scholarships for those 15-39 years old during their own diagnosis/treatment or during the diagnosis/treatment of a parent or sibling.

Tim and Tom Gullikson Foundation
1-888-GULLIKSON
Tim and Tom Gullikson Foundation Scholarships are available to brain tumor patients/survivors and/or children of brain tumor patients/survivors. Extra consideration is given to applicants who have an affiliation or connection to the tennis community.

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Survivorship

Beyond The Cure
Here you can find information regarding all aspects of cancer survivorship. A survivor or family member can also create a personalized risk assessment specific to diagnosis and treatment.

Cancer Survivors Network
Members may participate in public and private chat with other cancer survivors.

Childhood Cancer Guides (CCG)
Publishes books that provide clear explanations of the various types of childhood cancer; descriptions of state-of-the-art treatments for childhood cancers; emotional support for every member of the family and access to helpful resources.

Livestrong
The site explains what treatments may affect fertility, as well as preventative steps to take prior to treatment.

National Coalition for Cancer Survivorship
Their mission is to advocate for quality cancer care for all people touched by cancer. This website lists the national programs related to cancer survivors.

Survivorship Guidelines-COG
This site offers guidelines, screening recommendations, information on long-term follow-up needs and patient education materials for cancer survivors.

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Transplant

Children's Organ Transplant Association
Offers fund-raising guidance to families who need to raise money for transplants. It has some emergency funds available.

ExploreBMT.org
From diagnosis through survivorship, patients and their loved ones can use this site to browse resources and services from respected patient organizations.

National Foundation for Transplants
This organization assists families with fund-raising for the cost of transplants not covered by insurance and has links to most major transplant centers in the United States.

The Bone Marrow Foundation
This organization offers financial support to families experiencing bone-marrow transplantation. The site provides basic information about bone-marrow transplants.

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Transportation

Air Care Alliance
This is a nationwide league of humanitarian flying organizations dedicated to offering free flights for patients.

Air Charity Network
This not-for-profit organization flies patients who cannot afford commercial airfare to obtain specialized care.

Corporate Angel Network
Their sole mission is to help cancer patients access the best possible treatment by arranging free travel to treatment across the country using empty seats on corporate jets.

Mercy Medical Angels
They offer a patient travel helpline, airline travel program, volunteer pilot travel program and ground travel program.

National Patient Travel Center
Provides information about all forms of charitable, long-distance medical air transport and provides referrals to all appropriate sources of help available in the national network.

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Wish Foundations

Kids Wish Network
Grants wishes for children who are between the ages of 3- 18 and have a life-threatening illness. Anyone can refer a child, including a family member, friend, nurse, doctor, or social worker.

Make-A-Wish Foundation
Fulfills wishes for children with a life-threatening medical condition who have reached the age of 2 ½ and are younger than 18 at the time of referral.

Sunshine Foundation
Their sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged and abused children ages 3-18.

Wishing Well Foundation USA
The Foundation’s goal is to bring joy to children with terminal illnesses by providing them with their fondest wish in life.

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