Meet Allison!

Beyond the Cure Ambassador Scholarship Recipient, 2019–2022

At just 13 years old, Allison’s world forever changed when she was diagnosed with Ewing’s sarcoma, a rare and aggressive bone cancer. When the doctors shared the news with her and her parents, she recalled, “I didn’t really understand the severity, but I knew it was bad because my mom was crying, and it wasn’t really until we went home from that doctor’s appointment that I got on my iPod Touch and Googled things like ‘What is cancer? What is bone cancer? What is Ewing sarcoma?’ which the doctor said most likely was based on the initial X-ray. It wasn’t until that point that I kind of learned what cancer was and then very quickly after that, I was thrown headfirst into the world of cancer.”

The diagnosis left her with more questions than answers, and she immediately began researching her disease and its treatment. Allison was determined to understand as much as she could, but no amount of searching could prepare her for one devastating reality: infertility. “That’s when it really hit me. I remember reading on my iPod that cancer treatment usually causes infertility,” she shared. Becoming a mother was something she had always dreamed of, so learning that she would not be able to conceive children was crushing. Still, Allison knew she had to undergo treatment if she wanted a chance of survival.

Treatment began immediately with an intense year of chemotherapy combined with major limb-salvage surgery on her humerus to remove the tumor. The physical toll was grueling. Between the neuropathy and constant sickness from chemotherapy, Allison struggled to find the strength to keep going. Her parents, heartbroken as they watched their once-vibrant daughter suffer, tried everything they could to lift her spirits. One night, Allison’s mom suggested they read together as a distraction, and it soon became a ritual. “Every night, my mom and I would cuddle in her bed, and she would read aloud to me for hours until I finally fell asleep. One of the books we read was called ‘Heaven is Here’ by Stephanie Nielsen. She was an airplane crash survivor, and she was severely burned on the majority of her face and body, and her book was about sharing her journey to healing physically, emotionally, and mentally.”

The story resonated deeply with Allison. She recalled, “I remember feeling so touched by her story and that was just what I needed to hear. That really gave me the strength and hope to be able to move on and know that this dark time in my life was going to pass and that I could also, just like she did, move on.”

The treatments and recovery forced her to miss her entire freshman year of high school, a year most teenagers spend making friends, joining activities, and discovering themselves. She tried to attend classes for the first few weeks, but the cancer treatment quickly made it impossible to keep up with schoolwork, even from home. Ultimately, she had to take the entire year off, a difficult reality, as it meant missing the milestone of beginning high school alongside her peers. In the moment, however, her focus was on survival rather than academics. While life continued for her classmates, she was enduring the mental and physical toll of treatment, when she was offered a glimmer of hope regarding her future. At 16, she attempted to freeze her eggs through IVF, but devastatingly, it didn’t work. Doctors explained that her ovaries were already too damaged from treatment, and she would never be able to conceive children.

While she missed her friends, many of them remained by her side, visiting her in the hospital and at home, which softened the social disconnect. The real difficulty came when she returned to school after treatment. Determined to graduate on time with her class, she pushed herself to take online courses, summer school, and extra classes after hours, completing high school in just three years despite the exhaustion and lingering effects of chemotherapy. She struggled with the identity of being “the kid with cancer,” feeling self-conscious about her appearance and hesitant to talk about her experience.

As she looked ahead to college, Allison was eager for a fresh start, one free from the shadow cancer had cast over her high school years. She enrolled at Brigham Young University, excited to step into a new chapter.

But halfway through her first semester, her world was shaken once again. “In 2017, about halfway through my first semester at BYU, I learned that my cancer had returned in my hip,” she said. Hundreds of miles from home, without her familiar support system, she faced the terrifying news alone until her parents quickly boarded a flight to be by her side. She was ultimately forced to leave the university she loved, and she returned home to St. Louis for treatment.

This time, her doctors were candid about her prognosis. Chemotherapy would be harsh, but necessary. After several difficult rounds, her doctor recommended a PET scan to see if the treatment was effective. The results stunned everyone. “We got the results back and that was nothing short of a miracle. My scan showed that there was zero cancer in my body, nothing lit up on the scan. The only thing I can call it is a miracle,” she said.

Within a week of finishing chemotherapy, she underwent hip replacement surgery. Even in the midst of recovery, Allison set her sights on returning to BYU. “I told my doctors I was determined to be back at BYU by the next fall semester,” she recalled. Intensive physical therapy followed as she relearned how to walk, but her determination paid off. She made it back to school just as she had promised herself. After years of battling cancer and pushing through obstacles, Allison proudly graduated from college, fulfilling the goal she had set for herself years before.

Beating cancer twice before the age of 20 instilled in Allison a profound resilience. She found peace, joy, and a renewed sense of confidence. When she met her now husband, she was honest about her cancer journey and the likelihood she would not be able to have biological children. From the beginning of her diagnosis, doctors had been clear: conceiving children was nearly impossible. But after surviving two miracles already, she experienced a third. “By the time I was married, I came to terms with that, and I made myself new goals and aspirations in life that didn’t involve being a mother. Very shortly after I married, we found out that I was pregnant, and that experience of finding out I was pregnant after so many years of being told that it would never happen for me, I was so happy. It was such a miracle for me, and I now have two children, and they’re my miracle babies.”

Throughout her journey, Allison was surrounded by unconditional love. Her parents never left her side, carrying her through sleepless nights, hospital stays, and hard conversations. Her siblings were forced to grow up quickly. She knows they carry their own trauma from watching her battle, but she admires their bravery and credits them with being just as strong as she was. Family, friends, neighbors, and even strangers stepped in with meals, childcare, prayers, and encouragement. For Allison, it was especially moving to see people of different religions, backgrounds, and beliefs unite to support her family. Faith and community became her anchor.

Reflecting on her story, Allison shares a heartfelt message for others facing cancer: it’s okay to not be okay. She understands that the journey is not always filled with optimism and positivity, especially for teens and young adults who fully grasp the weight of their diagnosis. For Allison, she shares it’s “important to acknowledge the grief, fear, and sadness rather than feel pressured to hide behind constant bravery.” What helped most was having loved ones who sat with her in the pain, listened without trying to “fix” it, and simply grieved alongside her. Today, she sees her scars as powerful symbols of that journey.

Looking forward, Allison is clear about one thing: she refuses to credit cancer for her growth. While some survivors feel grateful for what the disease taught them, Allison has a different perspective. To her, cancer is nothing but cruel. What she celebrates is the strength she found within herself, her determination, faith, and hope that carried her through. Thriving beyond cancer, to her, means reclaiming her story, honoring her strength, and choosing joy without letting fear or trauma hold her back. Her message is one of hope and resilience: while the road through cancer is unimaginably hard, there is always support, always love, and always power in the strength you discover within yourself.

“As I’ve gotten older, I’ve definitely become a lot prouder of my scars. They are evidence of what has happened to me and the toll that cancer has taken on me. My scars are badges of bravery because they are proof of that resiliency I’ve had through so many years; they’re proof of my strength,” Allison said.

 

READ ALLISON’S ESSAY


If you would like to support other childhood cancer survivors in reaching their educational goals through the Beyond the Cure Ambassador Scholarship Program, click here.