Meet Austin – Retinoblastoma Warrior
"One of the puzzling things in life is that in the darkest part of life we discover the most incredible people. The National Children's Cancer Society is one of those remarkable heroes that have become part of our life."
Valentine’s Day brought a happy surprise to Carlos and Christine. Austin, their firstborn son, made his arrival and was a cheerful baby with a playful attitude. “Every time he laughed or carried an ordinary object as if it was his best friend, it made us happy.” said Christine. Too soon, his joyful demeanor became crucial to his survival and future happiness. “How unfathomable it was then, to be told that the unthinkable was upon him, and that it was very real,” she added.
A little over a year after Austin was born, the family endured the crushing blow of learning that their child had advanced tumors in both of his eyes. Austin was diagnosed with bilateral retinoblastoma, a rare cancer affecting the retina. The cancer had progressed to the point where Austin’s vision was compromised and he was vulnerable to secondary cancers in the future. The decisions they had to make for their son abruptly changed from the mundane, to deciding on removing his eyes in order to save his life.
The one-year-old bravely fought the disease for two years while his parents battled the everyday challenges of rising medical costs and an abnormal work schedule. The family traveled to New York, Houston and Philadelphia several times for Austin’s treatments. The National Children’s Cancer Society (NCCS) stepped in to help ease their burden by providing financial assistance for travel and meals and just as important, introducing a support system through NCCS’ online forum for parents of children with cancer.
“One of the puzzling things in life is that in the darkest part of life we discover the most incredible people. The National Children’s Cancer Society is one of those remarkable heroes that have become part of our life. Without the help of the NCCS, it would have been extremely difficult for us financially to travel back and forth for Austin’s treatments. The National Children’s Cancer Society has been a safe haven for us financially as well as emotionally.”